Developed by Arthritis Consumer Experts, in partnership with Lupus Canada, the National Lupus Survey gives people living with lupus an opportunity to share their unique experiences, challenges, and ideas for improving care.
Why this Survey matters
Lupus is a complex, chronic autoimmune disease that can affect virtually any part of the body. It is often misunderstood, difficult to diagnose, and challenging to manage. Many people living with lupus report:
- Long delays in diagnosis
- Limited access to specialists or culturally appropriate care
- Barriers to effective treatment
What the Survey covers
The survey asks about:
- Diagnosis and treatment journey
- Access to care and medications
- Physical, mental, and sexual health
- Impact on work and daily life
- Experiences with health equity
- Caregiver experiences and supports
It will take about 15 minutes to complete. All responses are anonymous and confidential.