Lupus is a complex autoimmune disease that can affect the skin, joints, kidneys, brain, and other organs. It often takes years to diagnose and can dramatically affect quality of life.
In this special episode of Arthritis at Home, Kelly Lendvoy from Arthritis Consumer Experts speaks with Leanne Mielczarek, CEO of Lupus Canada, about the official launch of the National Lupus Survey and the importance of collecting and amplifying the voices of people living with lupus across Canada. Kelly and Leanne discuss:
- Why this is the first patient-led national survey of its kind focused entirely on lived lupus experience
- What we hope to learn from people living with lupus across Canada
- How the results will shape advocacy and education
Take the Survey now
If you live with lupus, we want to hear from you! Your participation will help change how lupus is understood, treated, and supported in Canada.
Click here to take the Survey!
Acknowledgements
We thank Dr. Stephanie Keeling, a lupus researcher and rheumatologist, for her valuable input on the survey design, and Lupus Canada for their partnership in bringing this initiative to life.
Help us spread the word
Please watch the episode, share it with your community, and help promote the survey link across your social media, newsletters, and advocacy networks. Together, we can improve the lives of people living with lupus.
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